D2.311 - Real World Web Survey on the Burden of Urticaria

Urticaria significantly impacts patient quality of life. This study aimed to assess the disease burden of urticaria in a real-world setting.

An electronic questionnaire was distributed to participants of a patient education event held during World Urticaria Day. Data collected included demographics, urticaria type (acute/chronic), disease duration, time to treatment, treatment satisfaction, and the impact on quality of life, sleep, work, and studies.

Of 574 participants, 28 with urticaria (25 female, age 33-77 years) were included in the analysis. Twelve had acute urticaria (AU), and twelve had chronic spontaneous urticaria (CSU), with two reporting concomitant angioedema. Five CSU patients experienced symptoms for over five years. CSU patients demonstrated a longer delay in seeking medical attention, with 75% waiting up to three months compared to AU patients. Six patients consulted specialists (dermatologists/allergists), while others received primary care. Nearly all participants reported an impaired quality of life due to urticaria.

This study highlights the significant burden of urticaria on patients in this region, particularly those with CSU. The findings emphasize the need for early diagnosis and timely access to specialist care to improve patient outcomes.