D1.389 - How Youth Understand and Manage Risks Associated with Their Food Allergy in Everyday Life
Background
Despite healthcare, some youth encounter significant difficulties in managing food allergy in their everyday lives, such as overwhelming concerns about severe allergic reactions, limitations on everyday activities, excessive control over and avoidance of food. In comparison, some youth seem to manage their food allergy and the risk of life-threatening reactions in a balanced manner, while others engage in highly risky behavior. However, these differences and the reasons behind them remain unexplored. This study explores how youth understand and manage risk associated with food allergy in everyday life with the aim to inform future care initiatives.
Method
This qualitative study is based on critical psychological practice research. Data was generated through participant observation and informal interviews during a two-day camp with youth aged 18-23 (n=10) who had been diagnosed with food allergy in childhood. Thematic analysis was used, informed by a critical psychology theoretical framework.
Results
Risk associated with food allergy is an integrated aspect of the youth life trajectories. The allergy clinic plays a crucial role in how they come to understand and manage risk. Paradoxically, knowledge of risk fosters safety as well as uncertainty. Bodily awareness plays a crucial role in managing food allergy, but minor bodily sensations can trigger anxiety and fear of anaphylaxis. Establishing routines emerges as a key strategy for managing risk as routines reduce anxiety and facilitate participation in everyday social activities
Conclusion
The study highlights the complexity of managing food allergies in youth's everyday lives. How risk knowledge is translated from the clinic into everyday life varies and impacts risk management strategies differently. Healthcare professionals must address both physical and psychosocial aspects of living with risk associated with food allergy. Individually tailored risk communication that considers personal circumstances and experiences can help reduce anxiety and support strategies for managing food allergy in everyday life.
